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SAN DIEGO, Feb. 28, 2025 /PRNewswire/ -- Avidity Biosciences, Inc. (Nasdaq: RNA), a biopharmaceutical company committed to delivering a new class of RNA therapeutics called Antibody Oligonucleotide Conjugates (AOCs™), today announced it is joining the global community of patients, caregivers, families and healthcare providers to build broader awareness of rare diseases, including rare neuromuscular diseases, and the urgent need for more approved treatments for many of these conditions in support of Rare Disease Day®.
"Rare Disease Day represents an important opportunity for all of us, including people living with rare diseases, their friends, family and caregivers, and advocacy organizations around the world, to spotlight the many challenges that rare diseases present in daily living," said Sarah Boyce, President and Chief Executive Officer at Avidity. "We remain dedicated to building broader awareness of the devastating impact of rare, progressive neuromuscular disorders including DMD, DM1 and FSHD as well as rare cardiomyopathies and to hearing from the many patients and caregivers who inform and inspire our efforts to help. Their optimism, courage and insights fuel the work that we do every day."
Rare Disease Day takes place on the last day of February each year with the goal to raise awareness of the impact of rare diseases worldwide. EURORDIS established Rare Disease Day in 2008 and coordinates with more than 70 national alliance patient organizations each year to honor those living with rare diseases as well as their families and caregivers. Avidity joins with members of the global rare disease community including patients, caregivers, clinicians, friends and family in support of Rare Disease Day. To learn how you can get involved, visit the EURORDIS Rare Disease Day website here: www.rarediseaseday.org.
In recognition of Rare Disease Day, Avidity is supporting a range of activities in efforts to build broader awareness of rare diseases including DMD, DM1 and FSHD, such as:
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Supported the EveryLife Foundation for Rare Diseases "Rare Disease Week on Capitol Hill", that took place February 24-26, 2025 in Washington, D.C.
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Sponsoring the Jett Foundation's webinar "Thriving with Duchenne," being held today, February 28, 2025, including a panel discussion with people impacted by DMD who will share their experiences.
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Participating in EURORDIS "More Than You Can Imagine" campaign, a global effort to support people living with rare diseases and shine a spotlight on the power of resilience and connection.
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Sharing perspectives from the Avidity team about our commitment to the rare disease community and how we are inspired by members of the patient and treatment communities.